Data dictionary for the ACTORDS 20-year follow-up study

Metadata (data dictionary) and statistical analysis plan (including outcomes definitions for data dictionary) for the ACTORDS 20-year follow-up study. The DOI for the primary study publication will be added when available.

Data and associated documentation for participants who have consented to future re-use of their data are available to other users under the data sharing arrangements provided by the University of Auckland’s Human Health Research Services (HHRS) platform (https://research-hub.auckland.ac.nz/subhub/human-health-research-services-platform). The data dictionary and metadata are published on the University of Auckland’s data repository Figshare, which allocates a DOI and thus makes these details searchable and available indefinitely. Researchers are able to use this information and the provided contact address (dataservices@auckland.ac.nz) to request a de-identified dataset through the HHRS Data Access Committee. Data will be shared with researchers who provide a methodologically sound proposal and have appropriate ethical approval, where necessary, to achieve the research aims in the approved proposal. Data requestors are required to sign a Data Access Agreement that includes a commitment to using the data only for the specified proposal, not to attempt to identify any individual participant, a commitment to secure storage and use of the data, and to destroy or return the data after completion of the project. The HHRS platform reserves the right to charge a fee to cover the costs of making data available, if needed, for data requests that require additional work to prepare.