Data dictionary for the ACTORDS 20-year follow-up study
Metadata (data dictionary) and statistical analysis plan (including outcomes definitions for data dictionary) for the ACTORDS 20-year follow-up study. The DOI for the primary study publication will be added when available.
Data and associated documentation for participants who have consented to future re-use of their data are available to other users under the data sharing arrangements provided by the University of Auckland’s Human Health Research Services (HHRS) platform (https://research-hub.auckland.ac.nz/subhub/human-health-research-services-platform). The data dictionary and metadata are published on the University of Auckland’s data repository Figshare, which allocates a DOI and thus makes these details searchable and available indefinitely. Researchers are able to use this information and the provided contact address (dataservices@auckland.ac.nz) to request a de-identified dataset through the HHRS Data Access Committee. Data will be shared with researchers who provide a methodologically sound proposal and have appropriate ethical approval, where necessary, to achieve the research aims in the approved proposal. Data requestors are required to sign a Data Access Agreement that includes a commitment to using the data only for the specified proposal, not to attempt to identify any individual participant, a commitment to secure storage and use of the data, and to destroy or return the data after completion of the project. The HHRS platform reserves the right to charge a fee to cover the costs of making data available, if needed, for data requests that require additional work to prepare.
Funding
The Health Research Council of New Zealand
Ministry of Business, Innovation and Employment
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